Sickle Cell Disease Awareness

A candle loses none of its light by lighting another candle!

        This web site will now contain even more information!!!

SC COMMUNITY  BREAKING  NEWS/ANNOUNCEMENTS

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Very exciting news!!!!

Sickle Cell can be cured by BMT with half-match

This opens treatment to about 90% of patients!!!!

http://www.nytimes.com/2012/11/13/health/half-match-bone-marrow-transplants-cure-sickle-cell-in-trial.html?_r=0

http://bloodjournal.hematologylibrary.org/content/early/2012/09/06/blood-2012-07-438408 

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 June 10, 2013 Show!  WDC Radio World Sickel Cell Day and Sickle Cell Disease, Blood Donor, Transfusions and Bone Marrow Registry information with Nita Thompson and Dr. Cage Johnson, Produced by Proff Nes..Thank you all.  Check out  http://m.ustream.tv/recorded/34132059

 

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New on the PDF page, 

Marrow Transplant Patient Registration Form, if your Doctor fills it out?!?!?!?

 

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In the State of California, when your diagnosed with Sickle Cell and

"They" just don't get it ....Our New ... "File Complains" To Page"

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New State of California Sickle Cell Resources Website

CASickleCell.org

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 So CA Adult Group Meeting Locations

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Higher Doses of Morphine Justified for Sickle Cell Patients

  On PDF page

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Secretary Kathleen Sebelius announcement of the HHS Sickle Cell Initiative 

Sickle Cell Disease: Increasing Access and Improving Care
 http://minorityhealth.hhs.gov/

SUICIDE ~ Please Don't Go There!!!

THERE IS HELP ~ YOU ARE NOT ALONE
 
It is hard living diagnosed with Sickle Cell.  Many times family members and/or the medical staff don't understand or it seems as though they don't care. 
 
Although that may actually may be the case, please stand up with us to make a difference.  Invite people to visit our website so that they can be empowered. 
 
You are here for a reason and believe me when I say, "Everyone has physical challenges," it's just that Sickle Cell is yours.
 
Are you feeling desperate, alone or hopeless
 
PLEASE CONTACT:
 
Call the National Suicide Prevention Lifeline at 1-800-273-TALK (8255), a free, 24-hour hotline available to anyone in suicidal crisis or emotional distress. Your call will be routed to the nearest crisis center to you.

Red Nacional de Prevención del Suicidio

Cuando usted llama al número 1-888-628-9454, su llamada se dirige al centro de ayuda de nuestra red disponible más cercano. Cuando el centro contesta su llamada, usted estará hablando con una persona que le escuchará, le hará preguntas y hará todo lo que esté a su alcance para ayudarlo. Para información en español http://suicidepreventionlifeline.org/Culture/es/Default.aspx

 If you are being abused, bullied, harrassed, hurt

Tell someone! The National Center for Victims of Crime 1-800-FYI-CALL (394-2255). Online visit them at: http://www.ncvc.org/ncvc/main.aspx?dbID=dash_Home

 Remember you can always email us (AA4SCDAwareness@aol.com) and we will assist you in anyway we can.

 

Upcoming Events

Friday, Jul 21 at 8:00 AM - Tuesday, Jul 25 4:00 PM
Tuesday, Jun 19 All Day
Saturday, Jul 21 at 8:00 AM - Wednesday, Jul 25 4:00 PM
Wednesday, Jun 19 All Day

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